It’s not easy when you’re young. Learning how to speak up for yourself and take responsibility is a huge thing, and it doesn’t come naturally.
I was diagnosed young, so it was my parents and other family members who spoke for me. Mom would explain everything to the doctors and order medicine, too. I finally got to a certain age where my mom said that’s it – this is on you. You don’t need us to do these things anymore. It’s your responsibility.
I knew I was going to have to step up eventually, after all it’s my medicine and it’s me the appointments are for, right? However, it’s not just about those things alone. My 21st birthday is right around the corner now (that’s a big deal for me considering the fact that doctors didn’t think I’d live too long), and a lot of things are going to start to change. I’ve already learned to be happy with who I am. I have to learn to continue to stay true and stick up for myself when needed. I can make more of my own decisions, especially when it comes to health care.
What I’m trying to say is that you shouldn’t wait to work on things like this. Start as early as you can so that you’re comfortable. Who knows where I’d be if my parents hadn’t done a good job of pushing me to communicate these things? I also just thought it would be a good idea to bring this topic up like this so you can see it from the different perspective. Remember that you know you better than anybody else, too.
I learned a long time ago the wisest thing I can do is be on my own side, be an advocate for myself and others like me. ~ Maya Angelou ❤